{
"description": "**Concept**\\r\\nA living will is a verbal or written description of the patient’s wishes with regard to future medical action or end of their life. A living will is mainly used for situations in which the patient is no longer able to speak about these decisions with their healthcare provider.\\r\\n**Purpose**\\r\\nA good overview of the patient’s wishes is important. A healthcare provider can use the living will to discuss the existing wishes with the persons involved and to incorporate these wishes in their own policy. A concise, orderly list is of particular importance in acute care situations.\\r\\n**Evidence Base**\\r\\nThe list with types of living wills was developed in close consultation with the Dutch Patient and Consumer Federation (NPCF), the Dutch Association for Voluntary End of Life (NVVE) and the Dutch Patient Organization (NPV). \\r\\n\\r\\nThe list of types matches the living wills for which the various associations offer examples on their websites.\\r\\n\\r\\n**Example Instances**",
"_filename": "HdBe-AdvanceDirective.json",
"package_name": "healthdata.be.r4.cbb",
"date": null,
"derivation": "specialization",
"publisher": "Healthdata.be (Sciensano)",
"fhirVersion": "4.0.1",
"name": "HdBeAdvanceDirective",
"abstract": true,
"copyright": "Copyright and related rights waived via CC0, https://creativecommons.org/publicdomain/zero/1.0/. This does not apply to information from third parties, for example a medical terminology system. The implementer alone is responsible for identifying and obtaining any necessary licenses or authorizations to utilize third party IP in connection with the specification or otherwise.",
"type": "https://fhir.healthdata.be/StructureDefinition/LogicalModel/advance_directive",
"experimental": null,
"resourceType": "StructureDefinition",
"title": "HdBe AdvanceDirective",
"_description": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "**Concept**\r\nEen wilsverklaring is een mondelinge of schriftelijke omschrijving van de wens van de patiënt ten aanzien van toekomstig medisch handelen of het levenseinde. Een wilsverklaring is vooral voor situaties waarin de patiënt niet meer over deze beslissingen kan praten met de zorgverlener.\r\n**Purpose**\r\nEen goed overzicht van wensen van de patiënt is belangrijk. Een zorgverlener kan de wilsverklaring gebruiken om de bestaande wensen met de betrokkenen te bespreken en om deze wensen in het eigen beleid op te nemen. Vooral in de acute situatie is een beknopte en overzichtelijke lijst van belang. \r\n**Evidence Base**\r\nDe lijst met type wilsverklaringen is tot stand gekomen in nauw overleg met de Nederlandse Patiënten en Consumenten Federatie (NPCF), de Nederlandse Vereniging voor een Vrijwillig Levenseinde (NVVE) en de Nederlandse Patiënten Vereniging (NPV).\r\n\r\nDe lijst met types komt overeen met de wilsverklaringen waarvoor de verschillende verenigingen op hun websites voorbeelden voor aanbieden.\r\n**Example Instances**\r\n\r\n**References**\r\n1. NPCF - Wilsverklaring [Online] Beschikbaar op: https://www.patientenfederatie.nl/themas/wilsverklaring/wat-hoe [Geraadpleegd: 15 juni 2020].\r\n\r\n2. Wilsverklaringen van de NVVE [Online] Beschikbaar op: https://nvve.nl/index.php?cID=307 [Geraadpleegd: 15 juni 2020].\r\n\r\n3. NPV - Levenswensverklaring [Online] Beschikbaar op: https://npvzorg.nl/levenswensverklaring/ [Geraadpleegd: 15 juni 2020].\r\n**Revision History**\r\nPublicatieversie 1.0 (01-04-2015)\r\nBevat: [ZIB-91](https://bits.nictiz.nl/browse/ZIB-91), [ZIB-213](https://bits.nictiz.nl/browse/ZIB-213), [ZIB-214](https://bits.nictiz.nl/browse/ZIB-214), [ZIB-308](https://bits.nictiz.nl/browse/ZIB-308), [ZIB-356](https://bits.nictiz.nl/browse/ZIB-356).\r\n\r\nIncl. algemene wijzigingsverzoeken: \r\n[ZIB-94](https://bits.nictiz.nl/browse/ZIB-94), [ZIB-154](https://bits.nictiz.nl/browse/ZIB-154), [ZIB-200](https://bits.nictiz.nl/browse/ZIB-200), [ZIB-201](https://bits.nictiz.nl/browse/ZIB-201), [ZIB-309](https://bits.nictiz.nl/browse/ZIB-309), [ZIB-324](https://bits.nictiz.nl/browse/ZIB-324), [ZIB-326](https://bits.nictiz.nl/browse/ZIB-326).\r\n\r\nPublicatieversie 3.0 (01-05-2016)\r\nBevat: [ZIB-453](https://bits.nictiz.nl/browse/ZIB-453).\r\n\r\nPublicatieversie 3.1 (04-09-2017)\r\nBevat: [ZIB-564](https://bits.nictiz.nl/browse/ZIB-564), [ZIB-574](https://bits.nictiz.nl/browse/ZIB-574).\r\n\r\nPublicatieversie 3.1.1 (01-09-2020)\r\nBevat: [ZIB-1004](https://bits.nictiz.nl/browse/ZIB-1004), [ZIB-937](https://bits.nictiz.nl/browse/ZIB-937)."
} ]
} ]
},
"package_version": "0.4.0-alpha",
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/resource-effectivePeriod",
"valuePeriod": {
"start": "2020-09-01T00:00:00+02:00"
}
} ],
"status": "draft",
"language": "en-US",
"id": "c72be7a0-4b85-428f-9f78-3b8fea092a12",
"kind": "logical",
"_name": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "HdBe-Wilsverklaring"
} ]
} ]
},
"url": "https://fhir.healthdata.be/StructureDefinition/LogicalModel/HdBe-AdvanceDirective",
"version": null,
"differential": {
"element": [ {
"path": "advance_directive",
"min": 0,
"definition": "Root concept of the LivingWill information model. This concept contains all data elements of the LivingWill information model.",
"short": "AdvanceDirective",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Rootconcept van de bouwsteen Wilsverklaring. Dit concept bevat alle gegevenselementen van de bouwsteen Wilsverklaring."
} ]
} ]
},
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Wilsverklaring"
} ]
} ]
},
"max": "*",
"id": "advance_directive",
"base": {
"max": "*",
"min": 0,
"path": "advance_directive"
}
}, {
"path": "advance_directive.living_will_type",
"min": 1,
"definition": "List of the different types of living wills.",
"short": "LivingWillType",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Aanduiding van de verschillende soorten wilsverklaringen."
} ]
} ]
},
"type": [ {
"code": "CodeableConcept"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "WilsverklaringType"
} ]
} ]
},
"binding": {
"strength": "required",
"valueSet": "https://fhir.healthdata.be/ValueSet/WilsverklaringType",
"description": "LivingWillType codes"
},
"max": "1",
"id": "advance_directive.living_will_type",
"base": {
"max": "1",
"min": 1,
"path": "advance_directive.living_will_type"
}
}, {
"path": "advance_directive.living_will_date",
"min": 1,
"definition": "The date on which the living will was recorded.",
"short": "LivingWillDate",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "De datum waarop de wilsverklaring is vastgelegd."
} ]
} ]
},
"type": [ {
"code": "dateTime"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "WilsverklaringDatum"
} ]
} ]
},
"max": "1",
"id": "advance_directive.living_will_date",
"base": {
"max": "1",
"min": 1,
"path": "advance_directive.living_will_date"
}
}, {
"path": "advance_directive.disorder",
"min": 0,
"definition": "The problem or disorder to which the living will applies.",
"short": "Disorder",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Het probleem of aandoening waar de wilsverklaring betrekking op heeft."
} ]
} ]
},
"type": [ {
"code": "BackboneElement"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Aandoening"
} ]
} ]
},
"max": "*",
"id": "advance_directive.disorder",
"base": {
"max": "*",
"min": 0,
"path": "advance_directive.disorder"
}
}, {
"path": "advance_directive.disorder.problem",
"min": 1,
"definition": "Root concept of the Problem information model.\r\nA problem describes a situation with regard to an individual’s health and/or welfare. This situation can be described by the patient himselve (in the form of a complaint) or by their healthprofessional (in the form of a diagnosis, for example).",
"short": "Problem",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Rootconcept van de bouwsteen Probleem.\r\nEen probleem beschrijft een toestand met betrekking tot de gezondheid en/of het welzijn van een individu. Deze toestand kan zijn benoemd door de patiënt zelf (een klacht), of door zijn of haar zorgverlener (onder andere een diagnose)."
} ]
} ]
},
"type": [ {
"code": "Reference",
"targetProfile": [ "https://fhir.healthdata.be/StructureDefinition/LogicalModel/HdBe-Problem" ]
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Probleem"
} ]
} ]
},
"max": "1",
"id": "advance_directive.disorder.problem",
"base": {
"max": "1",
"min": 1,
"path": "advance_directive.disorder.problem"
}
}, {
"path": "advance_directive.representative",
"min": 0,
"definition": "The person who is the legal representative or is appointed as the authorized representative in the signed authorization.",
"short": "Representative",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "De persoon die wettelijke vertegerwoordiger is of in de ondertekende volmacht als gevolmachtigde wordt benoemd."
} ]
} ]
},
"type": [ {
"code": "BackboneElement"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Vertegenwoordiger"
} ]
} ]
},
"max": "1",
"id": "advance_directive.representative",
"base": {
"max": "1",
"min": 0,
"path": "advance_directive.representative"
}
}, {
"path": "advance_directive.representative.contact",
"min": 1,
"definition": "Root concept of the Contact information model. This root concept contains all data elements of the Contact information model.",
"short": "Contact",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Rootconcept van de bouwsteen Contactpersoon. Dit rootconcept bevat alle gegevenselementen van de bouwsteen Contactpersoon."
} ]
} ]
},
"type": [ {
"code": "Reference",
"targetProfile": [ "https://fhir.healthdata.be/StructureDefinition/LogicalModel/HdBe-Contact" ]
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Contactpersoon"
} ]
} ]
},
"max": "1",
"id": "advance_directive.representative.contact",
"base": {
"max": "1",
"min": 1,
"path": "advance_directive.representative.contact"
}
}, {
"path": "advance_directive.living_will_document",
"min": 0,
"definition": "Scanned source document with the living will and the patient's signature, such as a PDF.",
"short": "LivingWillDocument",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Ingescand brondocument met de wilsverklaring en handtekening van de patiënt, bijv. een PDF."
} ]
} ]
},
"type": [ {
"code": "base64Binary"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "WilsverklaringDocument"
} ]
} ]
},
"max": "1",
"id": "advance_directive.living_will_document",
"base": {
"max": "1",
"min": 0,
"path": "advance_directive.living_will_document"
}
}, {
"path": "advance_directive.comment",
"min": 0,
"definition": "Comment on the living will: the form, such as a medallion, tattoo, etc., or where the living will can be found.",
"short": "Comment",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Toelichting bij de wilsverklaring, bijvoorbeeld de vorm, zoals een penning, een tattoo etc. of waar de wilsverklaring te vinden is."
} ]
} ]
},
"type": [ {
"code": "string"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Toelichting"
} ]
} ]
},
"max": "1",
"id": "advance_directive.comment",
"base": {
"max": "1",
"min": 0,
"path": "advance_directive.comment"
}
} ]
},
"contact": [ {
"name": "Service portal – healthdata.be",
"telecom": [ {
"use": "work",
"value": "https://sciensano.service-now.com/sp",
"system": "url"
} ]
} ],
"baseDefinition": "http://hl7.org/fhir/StructureDefinition/Element"
}