{ "description": "The FHIR for FAIR - FHIR Implementation Guide aims to provide guidance on how HL7 FHIR can be used for supporting FAIR health data implementation and assessment.", "_filename": "ig-r4.json", "package_name": "hl7.fhir.uv.fhir-for-fair", "definition": { "page": { "page": [ { "title": "FHIR for FAIR Home Page", "nameUrl": "index.html", "generation": "markdown" }, { "title": "About this version", "nameUrl": "aboutThisVersion.html", "generation": "markdown" }, { "title": "Overview", "nameUrl": "rw-overview.html", "generation": "markdown" }, { "title": "General Recommendations", "nameUrl": "recommendations.html", "generation": "markdown" }, { "title": "Immunology Database and Analysis Portal", "nameUrl": "immPort.html", "generation": "markdown" }, { "title": "FAIR4Health Project", "nameUrl": "FAIR4Health.html", "generation": "markdown" }, { "title": "Benefits for research studies", "nameUrl": "benefitResearch.html", "generation": "markdown" }, { "title": "Leipzig Health Atlas (LHA)", "nameUrl": "leipzigHealthAtlas.html", "generation": "markdown" }, { "title": "Terminologies", "nameUrl": "terminology.html", "generation": "markdown" }, { "title": "Implementing the RDA Indicators", "nameUrl": "FHIRandRDAMetrics.html", "generation": "markdown" }, { "title": "RDA Indicators", "nameUrl": "RDAMetrics.html", "generation": "markdown" }, { "title": "Methodology", "nameUrl": "methodology.html", "generation": "markdown" }, { "title": "Deployments", "nameUrl": "deployment.html", "generation": "markdown" }, { "title": "Metadata and data", "nameUrl": "metadata.html", "generation": "markdown" }, { "title": "FAIR Guiding Principles", "nameUrl": "FAIR.html", "generation": "markdown" }, { "title": "Representing FAIR metadata with Citation", "nameUrl": "citation.html", "generation": "markdown" }, { "title": "Implementing the FAIR principles", "nameUrl": "FHIRandFAIR.html", "generation": "markdown" }, { "title": "FHIR identifiers and FAIR principles", "nameUrl": "FHIRidentifiers.html", "generation": "markdown" }, { "title": "Non-Invasive Multimodal Foetal ECG-Doppler Dataset for Antenatal Cardiology Research", "nameUrl": "ninfea.html", "generation": "markdown" }, { "title": "The Medical Information Mart for Intensive Care IV - Emergency Department (MIMIC-IV-ED, v1.0) dataset", "nameUrl": "mimic.html", "generation": "markdown" }, { "title": "The NFDI4Health consortia", "nameUrl": "NFDI4Health.html", "generation": "markdown" }, { "title": "Useful Downloads", "nameUrl": "downloads.html", "generation": "html" }, { "title": "IG Change History", "nameUrl": "changes.html", "generation": "html" } ], "title": "Table of Contents", "nameUrl": "toc.html", "generation": "html" }, "resource": [ { "name": "DocumentManifest (Subject Level Medatata)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:resource" } ], "reference": { "reference": "StructureDefinition/DocumentManifest-uv-f4f" }, "description": "This profile defines how to use the DocumentManifest resource to convey metadata information for a FAIR collection of data at the subject level realized by using HL7 FHIR", "exampleBoolean": false }, { "name": "Library (Study Level Medatata)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:resource" } ], "reference": { "reference": "StructureDefinition/Library-uv-f4f" }, "description": "This profile defines how to use the Library resource to convey metadata information for a FAIR dataset realized by using HL7 FHIR", "exampleBoolean": false }, { "name": "RelatedArtifact (FHIR for FAIR)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:complex-type" } ], "reference": { "reference": "StructureDefinition/RelatedArtifact-uv-f4f" }, "description": "This profile enhances the current RelatedArtifact data with the enhancements identified in FHIR R5", "exampleBoolean": false }, { "name": "ResearchStudy (Study Level Medatata)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:resource" } ], "reference": { "reference": "StructureDefinition/ResearchStudy-uv-f4f" }, "description": "This profile defines how to use the ResearchStudy resource to convey metadata information for a FAIR collection of data at the study level realized by using HL7 FHIR", "exampleBoolean": false }, { "name": "Usage Context (ResearchStudy)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/researchStudy-context" }, "description": "This extension allows ResearchStudy to provide richer information about the context of the study, when not already covered by the already defined elements", "exampleBoolean": false }, { "name": "Copyright and Licence", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/copyright" }, "description": "This extension may be used to provide Copyright and Licence information about the set of data described by this resource", "exampleBoolean": false }, { "name": "Persistent URL extension", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/persistentUrl" }, "description": "This extension enanches non-canonical resources with a persistent identifier (a kind of canonical url) to better support the FAIR requirement to have Globally Unique, Persistent and Resolvable Identifiers", "exampleBoolean": false }, { "name": "Classifier (RelatedArtifact)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/relatedArtifactClassifier" }, "description": "This extension enanches the current RelatedArtifact data type with the classifier element as specified in R5", "exampleBoolean": false }, { "name": "ResourceReference (RelatedArtifact)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/relatedArtifactResourceReference" }, "description": "This extension enanches the current RelatedArtifact data type allowing to reference FHIR resources", "exampleBoolean": false }, { "name": "RelatedArtifact (Library)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "StructureDefinition:extension" } ], "reference": { "reference": "StructureDefinition/library-relatedContent" }, "description": "This extension allows Library to provide information about RelatedArtifact", "exampleBoolean": false }, { "name": "Sample used by the Subject Level Collection (Condition)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Condition" } ], "reference": { "reference": "Condition/example-f4f-condition" }, "description": "Example of Condition resource used by the DocumentManifest example.", "exampleBoolean": true }, { "name": "Subject Level Data Collection (DocumentManifest)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "DocumentManifest" } ], "reference": { "reference": "DocumentManifest/example-f4f-manifest" }, "description": "Example of usage of the DocumentManifest resource to describe subject level metadata.", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/DocumentManifest-uv-f4f" }, { "name": "MedicationStatement Sample used by the Subject Level Collection (1)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "MedicationStatement" } ], "reference": { "reference": "MedicationStatement/example-f4f-medicationStatement-1" }, "description": "Example of MedicationStatement resource used by the DocumentManifest example.", "exampleBoolean": true }, { "name": "MedicationStatement Sample used by the Subject Level Collection (2)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "MedicationStatement" } ], "reference": { "reference": "MedicationStatement/example-f4f-medicationStatement-2" }, "description": "Example of MedicationStatement resource used by the DocumentManifest example.", "exampleBoolean": true }, { "name": "Sample used by the Subject Level Collection (Patient)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Patient" } ], "reference": { "reference": "Patient/example-f4f-patient" }, "description": "Example of Patient resource used by the DocumentManifest example.", "exampleBoolean": true }, { "name": "FAIR4Health portal (Library)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Library" } ], "reference": { "reference": "Library/f4h-1" }, "description": "Example of usage of the Library resource to describe project level metadata. This example is based on the data published by the FAIR4Health project thorugh the https://portal.fair4health.eu/ portal", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/Library-uv-f4f" }, { "name": "FAIR4Health study case 1 (Library)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Library" } ], "reference": { "reference": "Library/f4h-lib-1" }, "description": "Example of usage of the Library resource to describe study level metadata. This example is based on the FAIR4Health study case 1 Identification of multimorbidity patterns and polypharmacy correlation on the risk of mortality in elderly, and demonstrate the reproducibility of research", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/Library-uv-f4f" }, { "name": "FAIR4Health study case 2 (Library)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Library" } ], "reference": { "reference": "Library/f4h-lib-2" }, "description": "Example of usage of the Library resource to describe study level metadata. This example is based on the FAIR4Health study case 2 Develop and pilot an early prediction service for 30-days readmission risk in COPD (Chronic Obstructive Pulmonary Disease) patient", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/Library-uv-f4f" }, { "name": "FAIR4Health study case 2 (ResearchStudy)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "ResearchStudy" } ], "reference": { "reference": "ResearchStudy/f4h-rs-2" }, "description": "Example of usage of the ResearchStudy resource to describe study level metadata. This example is based on the FAIR4Health study case 2 Develop and pilot an early prediction service for 30-days readmission risk in COPD (Chronic Obstructive Pulmonary Disease) patient", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/ResearchStudy-uv-f4f" }, { "name": "Non-invasive foetal electrocardiography example (Library)", "extension": [ { "url": "http://hl7.org/fhir/tools/StructureDefinition/resource-information", "valueString": "Library" } ], "reference": { "reference": "Library/ninfea-1" }, "description": "Example of usage of the Library reosurce to describe study level metadata. This example is based on the Non-invasive foetal electrocardiography NInFEA case.", "exampleCanonical": "http://hl7.org/fhir/uv/fhir-for-fair/StructureDefinition/Library-uv-f4f" } ], "parameter": [ { "code": "copyrightyear", "value": "2020+" }, { "code": "releaselabel", "value": "STU 1 Ballot" }, { "code": "apply-jurisdiction", "value": "true" }, { "code": "apply-publisher", "value": "true" }, { "code": "apply-version", "value": "true" }, { "code": "path-history", "value": "http://hl7.org/fhir/uv/fhir-for-fair/history.html" }, { "code": "autoload-resources", "value": "true" }, { "code": "path-resource", "value": "input/capabilities" }, { "code": "path-resource", "value": "input/examples" }, { "code": "path-resource", "value": "input/extensions" }, { "code": "path-resource", "value": "input/models" }, { "code": "path-resource", "value": "input/operations" }, { "code": "path-resource", "value": "input/profiles" }, { "code": "path-resource", "value": "input/resources" }, { "code": "path-resource", "value": "input/vocabulary" }, { "code": "path-resource", "value": "input/maps" }, { "code": "path-resource", "value": "input/testing" }, { "code": "path-resource", "value": "input/history" }, { "code": "path-resource", "value": "fsh-generated/resources" }, { "code": "path-pages", "value": "template/config" }, { "code": "path-pages", "value": "input/images" }, { "code": "path-liquid", "value": "template/liquid" }, { "code": "path-liquid", "value": "input/liquid" }, { "code": "path-qa", "value": "temp/qa" }, { "code": "path-temp", "value": "temp/pages" }, { "code": "path-output", "value": "output" }, { "code": "path-tx-cache", "value": "input-cache/txcache" }, { "code": "path-suppressed-warnings", "value": "input/ignoreWarnings.txt" }, { "code": "template-html", "value": "template-page.html" }, { "code": "template-md", "value": "template-page-md.html" }, { "code": "apply-contact", "value": "true" }, { "code": "apply-context", "value": "true" }, { "code": "apply-copyright", "value": "true" }, { "code": "apply-license", "value": "true" }, { "code": "active-tables", "value": "true" } ] }, "date": "2021-12-05T00:01:34+00:00", "publisher": "Health Level Seven International - SOA Work Group", "fhirVersion": [ "4.1.0" ], "license": "CC0-1.0", "jurisdiction": [ { "coding": [ { "code": "001", "system": "http://unstats.un.org/unsd/methods/m49/m49.htm", "display": "World" } ] } ], "name": "FhirForFairIG", "type": null, "experimental": null, "resourceType": "ImplementationGuide", "title": "FHIR for FAIR - FHIR Implementation Guide", "package_version": "0.1.0", "status": "active", "id": "b74f4acf-31e9-4db4-a02a-ac3b46f54020", "kind": null, "url": "http://hl7.org/fhir/uv/fhir-for-fair/ImplementationGuide/hl7.fhir.uv.fhir-for-fair", "version": "0.1.0", "packageId": "hl7.fhir.uv.fhir-for-fair", "contact": [ { "name": "Health Level Seven International - SOA Work Group", "telecom": [ { "value": "http://www.hl7.org/Special/committees/soa", "system": "url" } ] }, { "name": "HL7 SOA Work Group", "telecom": [ { "value": "http://www.hl7.org/Special/committees/soa", "system": "url" } ] } ] }