{
  "description": "CodeSystem zur Dokumentation von Änderungen bei HPO-Phänotypen über Zeit. Eigene Codes des Moduls: HPO führt für diesen Zweck nichts. Sein Zweig Clinical course (HP:0031797) beschreibt den Verlauf der Krankheit — Onset, Pace of progression, Temporal pattern, Disease remission —, nicht die Veränderung eines einzelnen Phänotyps zwischen zwei Erhebungen. Vier der fünf Konzepte haben SNOMED-CT-Entsprechungen, die je Code unten angegeben sind; für newly-added führt SNOMED kein generisches Konzept.",
  "_filename": "CodeSystem-mii-cs-seltene-hpo-change-status.json",
  "package_name": "de.medizininformatikinitiative.kerndatensatz.seltene",
  "date": "2026-09-14T21:59:44+00:00",
  "meta": {
    "profile": [ "http://hl7.org/fhir/uv/crmi/StructureDefinition/crmi-shareablecodesystem", "http://hl7.org/fhir/uv/crmi/StructureDefinition/crmi-publishablecodesystem" ]
  },
  "publisher": "Medizininformatik Initiative",
  "jurisdiction": [ {
    "coding": [ {
      "code": "DE",
      "system": "urn:iso:std:iso:3166",
      "display": "Germany"
    } ]
  } ],
  "_publisher": {
    "extension": [ {
      "url": "http://hl7.org/fhir/StructureDefinition/translation",
      "extension": [ {
        "url": "lang",
        "valueCode": "de"
      }, {
        "url": "content",
        "valueString": "Medizininformatik Initiative"
      } ]
    } ]
  },
  "content": "complete",
  "name": "MII_CS_Seltene_HPO_ChangeStatus",
  "type": null,
  "experimental": "false",
  "resourceType": "CodeSystem",
  "title": "MII CS Seltene Erkrankungen HPO Change Status",
  "package_version": "2027.0.0-ballot",
  "extension": [ {
    "url": "http://hl7.org/fhir/StructureDefinition/cqf-knowledgeCapability",
    "valueCode": "shareable"
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/cqf-knowledgeCapability",
    "valueCode": "publishable"
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-versionPolicy",
    "valueCodeableConcept": {
      "coding": [ {
        "code": "package",
        "system": "http://terminology.hl7.org/CodeSystem/artifact-version-policy-codes",
        "display": "Package"
      } ]
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/resource-approvalDate",
    "valueDate": "2026-09-02"
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-topic",
    "valueCodeableConcept": {
      "coding": [ {
        "code": "C4873",
        "system": "http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl"
      } ]
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-author",
    "valueContactDetail": {
      "telecom": [ {
        "value": "thomas.debertshaeuser@charite.de",
        "system": "email"
      } ]
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-editor",
    "valueContactDetail": {
      "name": "Taskforce Core Data Set"
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-reviewer",
    "valueContactDetail": {
      "name": "Interoperability Working Group",
      "telecom": [ {
        "value": "https://www.medizininformatik-initiative.de/en/collaboration/interoperability-working-group",
        "system": "url"
      } ]
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-reviewer",
    "valueContactDetail": {
      "name": "National Steering Committee",
      "telecom": [ {
        "value": "https://www.medizininformatik-initiative.de/en/collaboration/national-steering-committee",
        "system": "url"
      } ]
    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-endorser",
    "valueContactDetail": {
      "name": "Interoperability Working Group",
      "telecom": [ {
        "value": "https://www.medizininformatik-initiative.de/en/collaboration/interoperability-working-group",
        "system": "url"
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    }
  }, {
    "url": "http://hl7.org/fhir/StructureDefinition/artifact-endorser",
    "valueContactDetail": {
      "name": "National Steering Committee",
      "telecom": [ {
        "value": "https://www.medizininformatik-initiative.de/en/collaboration/national-steering-committee",
        "system": "url"
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  } ],
  "status": "active",
  "id": "8c603cd8-9a19-4aee-bc33-c5fec6bdef49",
  "kind": null,
  "count": 5,
  "url": "https://www.medizininformatik-initiative.de/fhir/ext/modul-seltene/CodeSystem/mii-cs-seltene-hpo-change-status",
  "concept": [ {
    "code": "newly-added",
    "display": "Neu hinzugefügt",
    "definition": "Phänotyp wurde neu beobachtet/diagnostiziert"
  }, {
    "code": "improved",
    "display": "Verbessert",
    "definition": "Phänotyp hat sich verbessert"
  }, {
    "code": "degraded",
    "display": "Verschlechtert",
    "definition": "Phänotyp hat sich verschlechtert"
  }, {
    "code": "no-longer-observed",
    "display": "Nicht mehr beobachtet",
    "definition": "Phänotyp wird nicht mehr beobachtet/ist verschwunden"
  }, {
    "code": "unchanged",
    "display": "Unverändert",
    "definition": "Phänotyp ist unverändert geblieben"
  } ],
  "caseSensitive": true,
  "version": "2027.0.0-ballot",
  "contact": [ {
    "name": "Medizininformatik Initiative",
    "telecom": [ {
      "value": "https://www.medizininformatik-initiative.de/",
      "system": "url"
    } ]
  } ]
}