{
"description": null,
"_filename": "examples/questionnaire-FACITF.json",
"package_name": "nictiz.fhir.nl.r4.outcomebasedcare",
"date": "2024-10-18T10:17:09Z",
"meta": {
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"system": "http://hl7.org/fhir/FHIR-version"
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"source": "http://decor.nictiz.nl/fhir/4.0/uz-proms-",
"lastUpdated": "2024-10-18T10:17:09+00:00"
},
"publisher": "Nictiz",
"name": "FACIT_F",
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"code": [ {
"code": "70426-2",
"system": "http://loinc.org",
"display": "I feel fatigued in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik voel me vermoeid"
} ]
},
"required": false,
"text": "Ik voel me vermoeid"
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"code": [ {
"code": "70425-4",
"system": "http://loinc.org",
"display": "I feel weak all over in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik voel me slap over mijn hele lichaam"
} ]
},
"required": false,
"text": "Ik voel me slap over mijn hele lichaam"
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"code": [ {
"code": "70727-3",
"system": "http://loinc.org",
"display": "I feel listless - washed out - in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik voel me lusteloos (futloos)"
} ]
},
"required": false,
"text": "Ik voel me lusteloos (futloos)"
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"coding": [ {
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"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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"code": [ {
"code": "70304-1",
"system": "http://loinc.org",
"display": "I feel tired in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik voel me moe"
} ]
},
"required": false,
"text": "Ik voel me moe"
}, {
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"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.853",
"repeats": false,
"type": "choice",
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"valueCodeableConcept": {
"coding": [ {
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"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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"code": [ {
"code": "70728-1",
"system": "http://loinc.org",
"display": "I have trouble starting things because I am tired in the past 7 days [FACIT]"
} ],
"required": false,
"text": "Het kost me moeite om met dingen te beginnen omdat ik zo moe ben
"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.854",
"repeats": false,
"type": "choice",
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"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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"readOnly": false,
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"code": [ {
"code": "70729-9",
"system": "http://loinc.org",
"display": "I have trouble finishing things because I am tired in the past 7 days [FACIT]"
} ],
"required": false,
"text": "Het kost me moeite om dingen af te maken omdat ik zo moe ben
"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.855",
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"valueCodeableConcept": {
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"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70730-7",
"system": "http://loinc.org",
"display": "I have energy in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik voel me energiek"
} ]
},
"required": false,
"text": "Ik voel me energiek"
}, {
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"valueCodeableConcept": {
"coding": [ {
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"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "61890-0",
"system": "http://loinc.org",
"display": "I am able to do my usual activities in past 7 days [PROMIS]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik ben in staat om mijn gewone activiteiten te doen"
} ]
},
"required": false,
"text": "Ik ben in staat om mijn gewone activiteiten te doen"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.857",
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"type": "choice",
"extension": [ {
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"valueUrl": "https://decor.nictiz.nl/fhir/4.0/public"
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"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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} ],
"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70731-5",
"system": "http://loinc.org",
"display": "I need to sleep during the day in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik heb behoefte aan slaap overdag"
} ]
},
"required": false,
"text": "Ik heb behoefte aan slaap overdag"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.858",
"repeats": false,
"type": "choice",
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}, {
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"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70732-3",
"system": "http://loinc.org",
"display": "I am too tired to eat in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik ben te moe om te eten"
} ]
},
"required": false,
"text": "Ik ben te moe om te eten"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.859",
"repeats": false,
"type": "choice",
"extension": [ {
"url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-preferredTerminologyServer",
"valueUrl": "https://decor.nictiz.nl/fhir/4.0/public"
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"url": "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
} ]
}
} ],
"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70303-3",
"system": "http://loinc.org",
"display": "I need help doing my usual activities in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik heb hulp nodig bij het doen van mijn gebruikelijke activiteiten"
} ]
},
"required": false,
"text": "Ik heb hulp nodig bij het doen van mijn gebruikelijke activiteiten"
}, {
"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.860",
"repeats": false,
"type": "choice",
"extension": [ {
"url": "http://hl7.org/fhir/uv/sdc/StructureDefinition/sdc-questionnaire-preferredTerminologyServer",
"valueUrl": "https://decor.nictiz.nl/fhir/4.0/public"
}, {
"url": "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl",
"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
} ]
}
} ],
"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70733-1",
"system": "http://loinc.org",
"display": "I am frustrated by being too tired to do the things I want to do in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik vind het frustrerend dat ik te moe ben om de dingen te doen die ik wil doen"
} ]
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"required": false,
"text": "Ik vind het frustrerend dat ik te moe ben om de dingen te doen die ik wil doen"
}, {
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"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.861",
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"valueCodeableConcept": {
"coding": [ {
"code": "radio-button",
"system": "http://hl7.org/fhir/questionnaire-item-control",
"display": "Radio Button"
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"readOnly": false,
"answerValueSet": "http://decor.nictiz.nl/fhir/ValueSet/2.16.840.1.113883.2.4.3.11.60.140.11.14--20240226140032",
"code": [ {
"code": "70734-9",
"system": "http://loinc.org",
"display": "I have to limit my social activity because I am tired in the past 7 days [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Ik moet mijn sociale activiteiten beperken omdat ik moe ben"
} ]
},
"required": false,
"text": "Ik moet mijn sociale activiteiten beperken omdat ik moe ben"
} ],
"type": "group",
"readOnly": true,
"code": [ {
"code": "70895-8",
"system": "http://loinc.org",
"display": "Additional concerns - FACIT-F [FACIT]"
} ],
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Hieronder vindt u een lijst met uitspraken die andere mensen, met dezelfde ziekte als u, belangrijk vonden.** Omcirkel of duid a.u.b. één cijfer per regel aan om uw antwoord zoals het tijdens de afgelopen 7 dagen van toepassing was aan te geven.**"
} ]
},
"required": false,
"text": "Hieronder vindt u een lijst met uitspraken die andere mensen, met dezelfde ziekte als u, belangrijk vonden. Omcirkel of duid a.u.b. één cijfer per regel aan om uw antwoord zoals het tijdens de afgelopen 7 dagen van toepassing was aan te geven."
}, {
"text": "F (fatigue) score",
"type": "decimal",
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"repeats": false,
"readOnly": true,
"required": false,
"enableBehavior": "all"
} ],
"text": "Content FACIT-F",
"type": "group",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.794",
"repeats": false,
"readOnly": true,
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"enableBehavior": "all"
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"enableBehavior": "all",
"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.795",
"repeats": false,
"item": [ {
"text": "Scorerichting item: Hoger is beter",
"type": "string",
"_text": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/rendering-markdown",
"valueMarkdown": "Scorerichting item: Hoger is beter"
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"linkId": "2.16.840.1.113883.2.4.3.11.60.140.2.1.1436",
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"text": "Scoreberekening:
Gebruikte versie voor deze vragenlijst: FACIT-F score template 05.21.03 (https://www.facit.org/measures-scoring-downloads/FACIT-F-Scoring-Downloads).
Instructions how to calculate, derived from: FACIT-F scoring template 05.21.03
Missing answers do not generate a score for the calculation.
For negatively stated questions, reverse the item score (indicated by the property \"reverse item\" Y/N). To reverse, subtract the answer score from 4.
Sum the item scores for this panel.
Multiply the total by 13.
Divide the result by the number of items answered for this panel to produce the subscale score.
Algemene informatie (https://www.facit.org/scoring):
Scoring of the FACIT measures
For all FACIT measures, higher scores are better than lower scores. This is true whether measuring a symptom or a functional ability. All FACIT measures use raw total scoring approach without subsequent transformation. Scoring recommendations permit for a variety of component and composite calculations, depending on the desired outcome assessment, meeting FDA guidance recommendations for both global and targeted symptom evaluation.For any FACIT measure, subscale scores are calculated by first reversing negatively stated-items (subtracting the response from ‘4’) and then summing the raw (0-4) scores. A total score is then derived by summing subscale scores. For example, a total FACT-G score is obtained by summing individual subscale scores PWB + EWB + SWB + FWB. Total scores for the disease-, treatment-, and condition-specific subscales are typically obtained by summing all subscale scores PWB + EWB + SWB + FWB + additional concerns subscale. The scoring templates provided for each measure simplify this process by providing a framework to reverse score relevant items and prorate for missing data.
TOI
The TOI can be computed for any FACIT disease-, treatment-, or condition-specific scale. It is the sum of the Physical Well-Being (PWB), Functional Well-Being (FWB), and additional concerns subscales. Our experience with this TOI endpoint is that it is an efficient summary index of physical/functional outcomes. It is therefore a common endpoint used in clinical trials, because it is responsive to change in physical/functional outcomes, sometimes more than a total (overall) multidimensional aggregated score, which includes social and emotional well-being. While social and emotional well-being are very important to quality of life, they are not as likely to change as quickly or dramatically over time or in response to physical health interventions such as pharmaceutical treatments in clinical trials.
Missing Data
Relevant scoring options are outlined on each measure’s scoring template, where calculating reverse scored items and prorating for missing data has been integrated. In cases where individual items are skipped, subscale scores can be prorated using the average of the other answers in the scale. This is acceptable as long as more than 50% of the items were answered in the subscale (e.g., a minimum of 4 of 7 items, 4 of 6 items, etc.). The total score is then calculated as the sum of the un-weighted subscale scores. A FACIT measure is considered to be an acceptable indicator of patient quality of life as long as overall item response rate is greater than 80% (e.g., at least 22 of 27 FACT-G items completed). This is not to be confused with individual subscale item response rate, which allows a subscale score to be prorated for missing items if greater than 50% of items are answered. In addition, a total score should only be calculated if ALL of the component subscales have valid scores.
Electronic scoring
Scoring is intended to be completed by research and clinical staff rather than patients themselves. Raw scoring templates are available in English and electronic scoring options are currently not available from FACIT.
For guidance on electronic assessment please refer to: https://www.facit.org/ecoa-guidance
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"text": "Interpretatie score: Hoe hoger de score, hoe beter de kwaliteit van leven.",
"type": "string",
"_text": {
"extension": [ {
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"extension": [ {
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"valueBoolean": true
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"required": false,
"text": "Rekenregels"
} ],
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