{
"description": "**Concept**\\r\\nIn nearly all cases, a lengthy or life-threatening illness is a traumatic experience for the patient and their environment. Every patient deals with this in their own way. The way in which a person deals with problems and stress is also referred to as coping. Illness perception entails both the way the patient sees their situation and the way in which the patient and their environment deal with the situation (coping strategies).n\\r\\n**Purpose**\\r\\nInformation on the extent of the insight of the patient and their environment into the consequences of their disease enables nurses to properly support the patient and their family in learning to deal with the illness or health problem.\\r\\n**Example Instances**",
"_filename": "HdBe-IllnessPerception.json",
"package_name": "healthdata.be.r4.cbb",
"date": null,
"derivation": "specialization",
"publisher": "Healthdata.be (Sciensano)",
"fhirVersion": "4.0.1",
"name": "HdBeIllnessPerception",
"abstract": true,
"copyright": "Copyright and related rights waived via CC0, https://creativecommons.org/publicdomain/zero/1.0/. This does not apply to information from third parties, for example a medical terminology system. The implementer alone is responsible for identifying and obtaining any necessary licenses or authorizations to utilize third party IP in connection with the specification or otherwise.",
"type": "https://fhir.healthdata.be/StructureDefinition/LogicalModel/illness_perception",
"experimental": null,
"resourceType": "StructureDefinition",
"title": "HdBe IllnessPerception",
"_description": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "**Concept**\r\nEen langdurige of levenbedreigende ziekte is in vrijwel alle gevallen een traumatisch ervaring voor de patiënt en zijn omgeving. Iedere patiënt gaat op zijn eigen manier hiermee om. De manier waarop iemand met problemen en stress omgaat, wordt ook wel coping genoemd. Ziektebeleving gaat in op zowel de inschatting door de patiënt van zijn situatie als op de wijze waarop de patiënt en zijn omgeving met deze situatie omgaan (copingstrategieën).\r\n**Purpose**\r\nInformatie over de mate van inzicht van patiënt en zijn omgeving in de gevolgen van zijn ziekte stelt de verpleegkundige in staat de patiënt en zijn naasten adequaat te ondersteunen bij het leren omgaan met de ziekte of het gezondheidsprobleem.\r\n**Example Instances**\r\n\r\n**Revision History**\r\nPublicatieversie 1.0 (01-07-2015)\r\n\r\nPublicatieversie 3.0 (01-05-2016)\r\nBevat: [ZIB-453](https://bits.nictiz.nl/browse/ZIB-453)\r\n\r\nPublicatieversie 3.1 (04-09-2017)\r\nBevat: [ZIB-530](https://bits.nictiz.nl/browse/ZIB-530)"
} ]
} ]
},
"package_version": "0.4.1-alpha",
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/resource-effectivePeriod",
"valuePeriod": {
"start": "2020-09-01T00:00:00+02:00"
}
} ],
"status": "draft",
"language": "en-US",
"id": "38294af7-eae9-4c7e-bf28-399f44a2e821",
"kind": "logical",
"_name": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "HdBe-Ziektebeleving"
} ]
} ]
},
"url": "https://fhir.healthdata.be/StructureDefinition/LogicalModel/HdBe-IllnessPerception",
"version": null,
"differential": {
"element": [ {
"path": "illness_perception",
"min": 0,
"definition": "Root concept of the IllnessPerception information model. This root concept contains all data elements of the IllnessPerception information model.",
"short": "IllnessPerception",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Rootconcept van de bouwsteen Ziektebeleving. Dit concept bevat alle gegevenselementen van de bouwsteen Ziektebeleving."
} ]
} ]
},
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Ziektebeleving"
} ]
} ]
},
"max": "*",
"id": "illness_perception",
"base": {
"max": "*",
"min": 0,
"path": "illness_perception"
}
}, {
"path": "illness_perception.patient_illness_insight",
"min": 0,
"definition": "The patient’s illness insight describes their awareness of having an illness or health problem and what that means for their daily life.",
"short": "PatientIllnessInsight",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "Het ziekte-inzicht van de patiënt beschrijft het besef dat hij een ziekte of gezondheidsprobleem heeft en de betekenis hiervan voor zijn leven."
} ]
} ]
},
"type": [ {
"code": "string"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "ZiekteInzichtVanPatiënt"
} ]
} ]
},
"max": "1",
"id": "illness_perception.patient_illness_insight",
"base": {
"max": "1",
"min": 0,
"path": "illness_perception.patient_illness_insight"
}
}, {
"path": "illness_perception.coping_with_illness_by_patient",
"min": 0,
"definition": "The description of how the patient deals with their illness or health problem.",
"short": "CopingWithIllnessByPatient",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "De beschrijving hoe patiënt omgaat met het verloop van zijn ziekte of gezondheidsprobleem."
} ]
} ]
},
"type": [ {
"code": "string"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "OmgaanMetZiekteprocesDoorPatiënt"
} ]
} ]
},
"max": "1",
"id": "illness_perception.coping_with_illness_by_patient",
"base": {
"max": "1",
"min": 0,
"path": "illness_perception.coping_with_illness_by_patient"
}
}, {
"path": "illness_perception.coping_with_illness_by_family",
"min": 0,
"definition": "The description of how the family deals with the patient’s illness or health problem.",
"short": "CopingWithIllnessByFamily",
"_definition": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "De beschrijving hoe naasten omgaan met het verloop van de ziekte of het gezondheidsprobleem van de patiënt."
} ]
} ]
},
"type": [ {
"code": "string"
} ],
"_short": {
"extension": [ {
"url": "http://hl7.org/fhir/StructureDefinition/translation",
"extension": [ {
"url": "lang",
"valueCode": "nl-NL"
}, {
"url": "content",
"valueMarkdown": "OmgaanMetZiekteprocesDoorNaasten"
} ]
} ]
},
"max": "1",
"id": "illness_perception.coping_with_illness_by_family",
"base": {
"max": "1",
"min": 0,
"path": "illness_perception.coping_with_illness_by_family"
}
} ]
},
"contact": [ {
"name": "Service portal – healthdata.be",
"telecom": [ {
"use": "work",
"value": "https://sciensano.service-now.com/sp",
"system": "url"
} ]
} ],
"baseDefinition": "http://hl7.org/fhir/StructureDefinition/Element"
}