{ "description": null, "_filename": "ImplementationGuide-fhir.example.json", "package_name": "eu.miabis.r4", "definition": { "page": { "page": [ { "title": "Home", "nameUrl": "index.html", "generation": "markdown" } ], "title": "Table of Contents", "nameUrl": "toc.html", "generation": "html" }, "resource": [ { "name": "Biobank", "reference": { "reference": "StructureDefinition/miabis-biobank" }, "description": "This profile represents a Biobank, which is defined as an entity that stores samples and data related to the samples.", "exampleBoolean": false }, { "name": "BiobankInstance", "reference": { "reference": "Organization/BiobankInstance" }, "description": "Example instance of a Biobank", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-biobank" }, { "name": "Bioprocessing and Analytical Capabilities Code System", "reference": { "reference": "CodeSystem/miabis-bioprocessing-and-analytical-capabilities-cs" }, "description": "Code system representing the bioprocessing and analytical services that the biobank can offer to the clients. ", "exampleBoolean": false }, { "name": "Bioprocessing and Analytical Capabilities Extension", "reference": { "reference": "StructureDefinition/miabis-bioprocessing-and-analytical-capabilities-extension" }, "description": "Bioprocessing and analytical services that the biobank can offer to the clients.", "exampleBoolean": false }, { "name": "Bioprocessing and Analytical Capabilities Value Set", "reference": { "reference": "ValueSet/miabis-bioprocessing-and-analytical-capabilities-vs" }, "description": "Value set containing codes representing bioprocessing and analytical services that the biobank can offer to the clients. ", "exampleBoolean": false }, { "name": "characteristicVS", "reference": { "reference": "ValueSet/miabis-characteristic-VS" }, "description": "Value set containing codes for specifiying which characteristic is being described.", "exampleBoolean": false }, { "name": "Collection", "reference": { "reference": "StructureDefinition/miabis-collection" }, "description": "Collection represents a set of samples and/or data items collected and/or derived in a common context and stored under a common stewardship and available for future research", "exampleBoolean": false }, { "name": "Collection Dataset Type Extension", "reference": { "reference": "StructureDefinition/miabis-collection-dataset-type-extension" }, "description": "Types of datasets (groups of related data) obtained or otherwise derived from donors or their specimens.", "exampleBoolean": false }, { "name": "Collection Design Extension", "reference": { "reference": "StructureDefinition/miabis-collection-design-extension" }, "description": "The overall design of the collection that explains how the collection was/is built up.", "exampleBoolean": false }, { "name": "Collection Design Value Set", "reference": { "reference": "ValueSet/miabis-collection-design-vs" }, "description": "Value set containing codes representing the overall design of the collection that explains how the collection was/is built up.", "exampleBoolean": false }, { "name": "Collection Organization", "reference": { "reference": "StructureDefinition/miabis-collection-organization" }, "description": "Collection Organization represent a formal part of a organization, like ist name, contact information, publications, etc.", "exampleBoolean": false }, { "name": "Collection Sample Type Value Set", "reference": { "reference": "ValueSet/miabis-collection-sample-typ-vs" }, "description": "Value set containing codes for the collection sample types of the provided samples", "exampleBoolean": false }, { "name": "CollectionInstance", "reference": { "reference": "Group/CollectionInstance" }, "description": "example of a collection instance", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-collection" }, { "name": "CollectionOrgInstance", "reference": { "reference": "Organization/CollectionOrgInstance" }, "description": "Example instance of a Collection Organization", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-collection-organization" }, { "name": "Common Collaboration Topics Code System", "reference": { "reference": "CodeSystem/miabis-common-collaboration-topics-cs" }, "description": "Codes describing topics that the network partners collaborate on", "exampleBoolean": false }, { "name": "Common Collaboration Topics Extension", "reference": { "reference": "StructureDefinition/miabis-common-collaboration-topics-extension" }, "description": "Topics that the network partners collaborate on.", "exampleBoolean": false }, { "name": "Common Collaboration Topics Value Set", "reference": { "reference": "ValueSet/miabis-common-collaboration-topics-vs" }, "description": "Value set containing codes representing common collaboration topics of members of a network.", "exampleBoolean": false }, { "name": "Condition", "reference": { "reference": "StructureDefinition/miabis-condition" }, "description": "This profile represents a condition, which is linked to sample and donor. It is used to describe diagnosis of the donor and his/her sample.", "exampleBoolean": false }, { "name": "Condition Instance", "reference": { "reference": "Condition/ConditionInstance" }, "description": "example of a condition instance", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-condition" }, { "name": "Dataset Extension", "reference": { "reference": "StructureDefinition/miabis-dataset-type-extension" }, "description": "The data catogories from which data are available or can be linked to the sample donor", "exampleBoolean": false }, { "name": "dataset type Value Set", "reference": { "reference": "ValueSet/miabis-dataset-type-vs" }, "description": "The data categories from which data are available or can be linked to the sample donor. Can be one or more of the provided values", "exampleBoolean": false }, { "name": "Description extension", "reference": { "reference": "StructureDefinition/miabis-organization-description-extension" }, "description": "Description of the collection in English.", "exampleBoolean": false }, { "name": "DetailedSampleType", "reference": { "reference": "CodeSystem/miabis-detailed-samply-type-cs" }, "description": "Code system for the detailed sample type of a sample", "exampleBoolean": false }, { "name": "DetailedSampleTypeVS", "reference": { "reference": "ValueSet/miabis-detailed-sample-type-vs" }, "description": "This value set contains codes for the detailed sample type of the sample.", "exampleBoolean": false }, { "name": "Diagnosis Report", "reference": { "reference": "StructureDefinition/miabis-diagnosis-report" }, "description": "Diagnosis Report provides information about the diagnosis linked to sample", "exampleBoolean": false }, { "name": "DiagnosisVS", "reference": { "reference": "ValueSet/miabis-diagnosis-vs" }, "description": "Value set containig ICD-10 codes for diagnosis", "exampleBoolean": false }, { "name": "Example Diagnosis Report", "reference": { "reference": "DiagnosticReport/DiagnosisInstance" }, "description": "example of a diagnosis report", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-diagnosis-report" }, { "name": "Example Donor", "reference": { "reference": "Patient/DonorInstance" }, "description": "Example instance of a Donor", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-sample-donor" }, { "name": "Example observation", "reference": { "reference": "Observation/ObservationInstance" }, "description": "Example instance of an Observation", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-observation" }, { "name": "Inclusion Criteria", "reference": { "reference": "CodeSystem/miabis-inclusion-criteria-cs" }, "description": "Code system describing information on type of parameters that determine which subjects will become collection participant", "exampleBoolean": false }, { "name": "Inclusion Criteria Extension", "reference": { "reference": "StructureDefinition/miabis-inclusion-criteria-extension" }, "description": "Information on type of parameters that determine which subjects will become collection participants.", "exampleBoolean": false }, { "name": "Inclusion Criteria ValueSet", "reference": { "reference": "ValueSet/miabis-inclusion-criteria-vs" }, "description": "Value set containing codes describing information on type of parameters that determine which subjects will become collection participants.", "exampleBoolean": false }, { "name": "Infrastructural Capabilities Code System", "reference": { "reference": "CodeSystem/miabis-infrastructural-capabilities-cs" }, "description": "Code sistem representing the echnical infrastructural capabilities that the biobank can offer to the clients.", "exampleBoolean": false }, { "name": "Infrastructural Capabilities Extension", "reference": { "reference": "StructureDefinition/miabis-infrastructural-capabilities-extension" }, "description": "The technical infrastructural capabilities that the biobank can offer to the clients.", "exampleBoolean": false }, { "name": "Infrastructural Capabilities ValueSet", "reference": { "reference": "ValueSet/miabis-infrastructural-capabilities-vs" }, "description": "Value set containig codes representing the technical infrastructural capabilities that the biobank can offer to the clients.", "exampleBoolean": false }, { "name": "JuristicPersonExtension", "reference": { "reference": "StructureDefinition/miabis-juristic-person-extension" }, "description": "Juristic person i.e. a university, concern, county council etc. for the network/collection.", "exampleBoolean": false }, { "name": "Material Type Value Set", "reference": { "reference": "ValueSet/miabis-material-type-vs" }, "description": "Value set containing codes for the material type of the sample.", "exampleBoolean": false }, { "name": "MIABIS Characteristics code system", "reference": { "reference": "CodeSystem/miabis-characteristicCS" }, "description": "Codes for specifiying which characteristic is being described.", "exampleBoolean": false }, { "name": "MIABIS Code system for the source of the sample", "reference": { "reference": "CodeSystem/miabis-sample-source-cs" }, "description": "This Code system defines codes for the source of the sample", "exampleBoolean": false }, { "name": "MIABIS Collection Dataset Type", "reference": { "reference": "ValueSet/miabis-collection-dataset-type-vs" }, "description": "Value set containing codes describing the type of dataset that is part of a collection.", "exampleBoolean": false }, { "name": "MIABIS Collection Dataset Type", "reference": { "reference": "CodeSystem/miabis-collection-dataset-typeCS" }, "description": "Codes describing the type of dataset that is part of a collection.", "exampleBoolean": false }, { "name": "MIABIS Collection Design code System", "reference": { "reference": "CodeSystem/miabis-collection-design-cs" }, "description": "Codes describing the overall design of the collection that explains how the collection was/is built up.", "exampleBoolean": false }, { "name": "MIABIS Collection Sample Type Code System", "reference": { "reference": "CodeSystem/miabis-collection-sample-type-cs" }, "description": "Codes for the collection sample types of the provided samples", "exampleBoolean": false }, { "name": "MIABIS ContactType code system", "reference": { "reference": "CodeSystem/miabis-contact-type" }, "description": "Contact Type of the managing person of collection or dataset", "exampleBoolean": false }, { "name": "MIABIS Dataset Type Code System", "reference": { "reference": "CodeSystem/miabis-dataset-type-CS" }, "description": "Codes for the type of dataset in used in Sample Donor resource", "exampleBoolean": false }, { "name": "MIABIS Material Type Code System", "reference": { "reference": "CodeSystem/miabis-material-type-CS" }, "description": "Codes for the material type of a sample", "exampleBoolean": false }, { "name": "MIABIS Sample Collection Setting Code System", "reference": { "reference": "CodeSystem/miabis-sample-collection-setting-cs" }, "description": "Code set for the context in which the sample collection was conducted.", "exampleBoolean": false }, { "name": "MIABIS Sex Code System", "reference": { "reference": "CodeSystem/miabis-sex-cs" }, "description": "Codes for providing information about sex of the patient", "exampleBoolean": false }, { "name": "MIABIS Storage Temperature Code System", "reference": { "reference": "CodeSystem/miabis-storage-temperature-cs" }, "description": "Code System used to describe the storage temperatur of a sample", "exampleBoolean": false }, { "name": "MIABIS Use and Access Conditions Code System", "reference": { "reference": "CodeSystem/miabis-use-and-access-conditions-cs" }, "description": "Code system representing the conditions that may change the availability of the samples/data in the collection.", "exampleBoolean": false }, { "name": "Network", "reference": { "reference": "StructureDefinition/miabis-network" }, "description": "This resource represents a group of interconnected biobanks, collections, and/or research resources", "exampleBoolean": false }, { "name": "Network Organization", "reference": { "reference": "StructureDefinition/miabis-network-organization" }, "description": "Network Organization represent a formal part of a network member, like ist name, contact information, url, etc.", "exampleBoolean": false }, { "name": "NetworkInstance", "reference": { "reference": "Group/NetworkInstance" }, "description": "example of a network instance", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-network" }, { "name": "NetworkOrgInstance", "reference": { "reference": "Organization/NetworkOrgInstance" }, "description": "example of a network organization instance", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-network-organization" }, { "name": "Number Of Subjects", "reference": { "reference": "StructureDefinition/miabis-number-of-subjects-extension" }, "description": "Total number of subjects included in the collection.", "exampleBoolean": false }, { "name": "Observation", "reference": { "reference": "StructureDefinition/miabis-observation" }, "description": "Observation containing ICD-10 code of diagnosis", "exampleBoolean": false }, { "name": "Organisational Capabilities", "reference": { "reference": "CodeSystem/miabis-organisational-capabilities-cs" }, "description": "This code system represents the organisational capabilities and services that the biobank can provide to support clients.", "exampleBoolean": false }, { "name": "Organisational Capabilities Extension", "reference": { "reference": "StructureDefinition/miabis-organisational-capabilities-extension" }, "description": "The organisational capabilities and services that the biobank can provide to support clients.", "exampleBoolean": false }, { "name": "Organisational Capabilities Value Set", "reference": { "reference": "ValueSet/miabis-organisational-capabilities-vs" }, "description": "Value set containing codes representing the organisational capabilities and services that the biobank can provide to support clients", "exampleBoolean": false }, { "name": "Publications Extension", "reference": { "reference": "StructureDefinition/miabis-publications-extension" }, "description": "Key publications produced in the collection.", "exampleBoolean": false }, { "name": "Quality Management Standard Extension", "reference": { "reference": "StructureDefinition/miabis-quality-management-standard-extension" }, "description": "The standards that the biobank is certified or accredited for.", "exampleBoolean": false }, { "name": "Sample", "reference": { "reference": "StructureDefinition/miabis-sample" }, "description": "Sample is a portion or quantity of biological material that is collected from a sample donor, or a digital representation of a biological entity of the sample donor, such as an image.", "exampleBoolean": false }, { "name": "Sample Collection Setting Extension", "reference": { "reference": "StructureDefinition/miabis-sample-collection-setting-extension" }, "description": "The context in which the sample collection was/is conducted.", "exampleBoolean": false }, { "name": "Sample Collection Setting Value Set", "reference": { "reference": "ValueSet/miabis-sample-collection-setting-vs" }, "description": "Value set containing codes for the context in which the sample collection was conducted.", "exampleBoolean": false }, { "name": "Sample content diagnosis", "reference": { "reference": "StructureDefinition/miabis-sample-diagnosis-extension" }, "description": "The ICD-10 code describing the diagnosis of the sample content, such as whether the sample contains carcinogenic material", "exampleBoolean": false }, { "name": "Sample Donor", "reference": { "reference": "StructureDefinition/miabis-sample-donor" }, "description": "Sample donor is a person who is a source of either a biological material or a digital representation of a biological entity such as an image.", "exampleBoolean": false }, { "name": "Sample Source Extension", "reference": { "reference": "StructureDefinition/miabis-sample-source-extension" }, "description": "The source from which the samples were collected or isolated.", "exampleBoolean": false }, { "name": "Sample Source Value Set", "reference": { "reference": "ValueSet/miabis-sample-source-vs" }, "description": "Value set containing the possible sources of a sample.", "exampleBoolean": false }, { "name": "Sample storage temperature", "reference": { "reference": "StructureDefinition/miabis-sample-storage-temperature-extension" }, "description": "The long-term temperature at which the sample is stored after preparation, based on SPREC v3", "exampleBoolean": false }, { "name": "SampleInstance", "reference": { "reference": "Specimen/SampleInstance" }, "description": "example of a sample instance", "exampleCanonical": "https://fhir.bbmri-eric.eu/fhir/StructureDefinition/miabis-sample" }, { "name": "Search Group by extension containing members", "reference": { "reference": "SearchParameter/ExtensionMemberEntitySearch" }, "description": "Search parameter for searching Group by provided members via extension", "exampleBoolean": false }, { "name": "Sex Value Set", "reference": { "reference": "ValueSet/miabis-sex-vs" }, "description": "Biological sex of the sample donor. Can be one or more of the provided values:", "exampleBoolean": false }, { "name": "Storage Temperature Value Set", "reference": { "reference": "ValueSet/miabis-storage-temperature-vs" }, "description": "Value set containing codes for different storage temperatures.", "exampleBoolean": false }, { "name": "Use and Access Conditions Extension", "reference": { "reference": "StructureDefinition/miabis-use-and-access-conditions-extension" }, "description": "The conditions that may change the availability of the samples/data in the collection.", "exampleBoolean": false }, { "name": "Use and Access Conditions Value Set", "reference": { "reference": "ValueSet/miabis-use-and-access-conditions-vs" }, "description": "Value set containing codes describing the conditions that may change the availability of the samples/data in the collection.", "exampleBoolean": false } ], "parameter": [ { "code": "copyrightyear", "value": "2024+" }, { "code": "releaselabel", "value": "ci-build" } ] }, "date": null, "publisher": "Example Publisher", "fhirVersion": [ "4.0.1" ], "license": "AGPL-3.0-or-later", "name": "MiabisOnFHIR", "type": null, "experimental": null, "resourceType": "ImplementationGuide", "title": null, "package_version": "0.2.0", "status": "active", "id": "35eb55d2-97ed-43cd-a740-fc0626397ffd", "kind": null, "url": "https://fhir.bbmri-eric.eu/fhir/ImplementationGuide/fhir.example", "version": "0.1.0", "packageId": "fhir.example", "contact": [ { "name": "Example Publisher", "telecom": [ { "value": "http://example.org/example-publisher", "system": "url" } ] } ] }